About Rarediseases
Rarediseases is a Government & Social Sector company. Rare diseases information and resources are provided online. Its website rarediseases.org draws about 536 thousand monthly visits. Its focus areas include Healthcare and Healthcare Foundations. Its legal entity is National Organization for Rare Disorders, Inc.
Company details
An online platform focused on rare diseases is maintained by Rarediseases through the domain rarediseases.org. Educational materials, patient support resources, and awareness initiatives are offered to affected individuals and healthcare providers. Operations center on digital dissemination of factual content about rare disorders, with no specific geographic location indicated. The sector involves healthcare information services, emphasizing accessibility for global users without physical offices noted.
- SectorsGovernment & Social Sector
- Website category Health · Health Conditions and Concerns
- Website rarediseases.org
- Social LinkedIn X Facebook YouTube
- Legal Name National Organization For Rare Disorders, Inc
- Latest Funding Round$1.39M (USD), Grant
Aug 2008
- InvestorsHHS
& 1 more
Apps and channels of Rarediseases
its YouTube channel National Organization for Rare Disorders (NORD) has 6.91K subscribers and 30 videos.
Videos from Rarediseases
The most watched videos on Rarediseases's YouTube channel, National Organization for Rare Disorders (NORD) (6.91K subscribers). Click a video to play it here.
Funding Insights of Rarediseases
- Total Rounds 2
- Last Round Grant — $1.39M
- First Round $25,000
(Mar 2008)
- Investors Count 2
All 2 funding rounds of Rarediseases with amounts and investors; the two latest post-money valuations are shown, the rest are part of the premium plan.
2 investors in total: 2 institutional.
Investors in Rarediseases
Rarediseases has secured backing from 2 investors, including institutional investors. Prominent investors backing the company include HHS and U.S. Department of Education.
| Investor | Description | Founded Year | Domain | Location |
|---|---|---|---|---|
Public health and human services are overseen by HHS. | 1953 | hhs.gov | ||
Education promotion is managed by the federal agency ED. | 1980 | ed.gov |
Investor details for Rarediseases
The complete investor list, round-by-round participation and investor portfolios require an active premium plan.
- Complete investor list
- Round participation
- Investor portfolios
- Co-investor network
Verified entity values are shown only after access is granted.
People of Rarediseases
31 people are tracked at Rarediseases (11 in leadership, 14 in board & advisors, 6 in team).
| Name | Role | Group |
|---|---|---|
Pamela Gavin | Chief Executive Officer | Leadership |
Jill L. Pollander | VP, Patient Services | Leadership |
Prashant Goel | VP, Information Technology | Leadership |
Norine Schwarzchild | VP, Human Resources | Leadership |
Edward Neilan | Chief Medical & Scientific Officer | Leadership |
Kelly Esperias | Chief Strategy & Operations Officer | Leadership |
Jackie Avial | Director Of Content, Marketing & Communications | Leadership |
Janine Lewis | Director Of Research Operations | Leadership |
Marybeth Mcafee | Director Of Medical Affairs | Leadership |
Kasey Baker | Associate Director Of Technology | Leadership |
Cheryl Herbert | Vice President Of Marketing & Communications | Leadership |
Shafali Spurling Jeste | Director | Board & advisors |
Phillip L. Pearl | Director | Board & advisors |
Kay Holcombe | Chair | Board & advisors |
Jim Palma | Secretary | Board & advisors |
Susan A. Berry | Director | Board & advisors |
Mark Skinner | Director | Board & advisors |
Leon Eidelman | Director | Board & advisors |
Dennis Jackman | Vice Chair | Board & advisors |
Mike Porath | Director | Board & advisors |
11 more people are available in the full profile.
Complete people profiles for Rarediseases
Full employee and board profiles, team structure, tenure and professional contact details require an active premium plan.
- Full employee list
- Team structure
- Board tenure
- Professional contacts
Verified entity values are shown only after access is granted.
Timeline of Rarediseases
2 dated milestones of Rarediseases, from founding to its latest funding, stage changes and deals.
- Funding First funding round of $25K.
- Funding Latest funding round, Grant, of $1.4M.
Web traffic of Rarediseases
The website of Rarediseases (rarediseases.org) receives about 535.9K visits a month and ranks #113,304 among all websites worldwide, #3,322 in Health Conditions and Concerns.
- Monthly visits535.9K
▲ 3.5% vs previous month
- Unique visitors296.4K
per month
- Global rank#113,304
among all websites
- Category rank#3,322
Health · Health Conditions and Concerns
- Bounce rate48%
- Pages per visit1.7
- Average visit41 sec
- DevicesDesktop 34% · Mobile 66%
Websites whose visitors overlap most with Rarediseases. Affinity shows how closely the audiences match.
| Website | Domain | Audience affinity | Monthly visits | Global rank | Profile |
|---|---|---|---|---|---|
globalgenes.org | globalgenes.org | 100% | #947,716 | – | |
| eurordis.org | 97% | 56.8K | #660,296 | View details | |
rarediseaseday.org | rarediseaseday.org | 94% | #802,104 | – | |
orpha.net | orpha.net | 91% | #75,870 | – | |
checkorphan.org | checkorphan.org | 87% | #1,951,359 | – | |
| •••••••••• | ••••••.com | ••% | •.•M | #••••• | – |
| •••••••••• | ••••••.com | ••% | •.•M | #••••• | – |
| •••••••••• | ••••••.com | ••% | •.•M | #••••• | – |
All 40 similar websites and full traffic analytics for Rarediseases
The complete similar-websites list, audience overlap and engagement analytics require an active premium plan.
- 40 similar websites
- Audience overlap
- Engagement analytics
- Traffic by brand
Verified entity values are shown only after access is granted.
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Frequently Asked Questions about Rarediseases
An online platform focused on rare diseases is maintained by Rarediseases through the domain rarediseases.org. Educational materials, patient support resources, and awareness initiatives are offered to affected individuals and healthcare providers. Operations center on digital dissemination of factual content about rare disorders, with no specific geographic location indicated. The sector involves healthcare information services, emphasizing accessibility for global users without physical offices noted.
Rarediseases has 2 investors. Key investors include HHS, and U.S. Department of Education.
Rarediseases operates through National Organization For Rare Disorders, Inc.
The website of Rarediseases receives about 536 thousand visits a month and ranks #113,304 among all websites worldwide.